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Get involved: The PAPAA Forum
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Use the contact form and please select the PAPAA FORUM from the topic drop-down, to tell us what's on your mind*

You are welcome to:

  • ask questions
  • share your experiences
  • express your opinions
  • offer support or practical tips

Please post – and respond – with:

  • kindness and respect for others
  • an open mind
  • a non‑discriminatory attitude

Posts are personal experiences and views. They may not reflect your own situation and are not a substitute for medical advice. If you are worried about your health or treatment, always speak to your own healthcare professional.

*All posts and replies will be subject to moderation. We will acknowledge authorship as a 'website user' unless we have full permission to publish a real name.

To reply to a post you will need to be a website member, which is free to join.

Does anyone else have Myleodysplastic syndrome as well as PsA?

Does anyone else have Myleodysplastic syndrome as well as PSA [psoriatic arthritis]? I am severely neutropenic but starting sekunimab [secukinumab] Monday. Apparently the untreated PSA is helping drive the blood cancer.

Seasonal skin – does weather affect your psoriasis?

Many people say their psoriasis or psoriatic arthritis changes with the seasons, for example, drier and itchier in cold weather, or more irritated by heat, sweat or sun.

You might find yourself using thicker moisturisers in winter, being more careful with hot showers and indoor heating, or focusing more on sun protection and clothing in summer.

How are you doing?

This week on the forum: how are you really doing?

Living with psoriasis or psoriatic arthritis can mean good days, bad days, and a lot of days in between. Some weeks it’s the skin, some weeks it’s the joints, mood, work, family – or all of it at once.

How has this week been for you so far?

  • Are your skin or joints better, worse, or about the…
Personal Independence Payment

I have psoriasis and wanted to know if pip claim is an option?

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