Skip to Content
Get involved: The PAPAA Forum
Welcome to:

The PAPAA Forum

Share, listen, support

Use the contact form and please select the PAPAA FORUM from the topic drop-down, to tell us what's on your mind*

You are welcome to:

  • ask questions
  • share your experiences
  • express your opinions
  • offer support or practical tips

Please post – and respond – with:

  • kindness and respect for others
  • an open mind
  • a non‑discriminatory attitude

Posts are personal experiences and views. They may not reflect your own situation and are not a substitute for medical advice. If you are worried about your health or treatment, always speak to your own healthcare professional.

*All posts and replies will be subject to moderation. We will acknowledge authorship as a 'website user' unless we have full permission to publish a real name or your preferred choice.

To reply to a post you will need to be a website member, which is free to join.

Life, critical illness cover and income protection insurance.

I am writing as we are struggling to get my partner life insurance, critical illness cover and income protection insurance. She never had cover, is 44 and has psoriatic arthritis. We have gotten a broker now to try to help us find cover and we are struggling. We were wondering if there are insurers the PSA community tend to use or to try that are…

Anyone noticed their skin changes in the autumn?

I may be imagining it, but my skin always seems to know when autumn is on the way before I do. The plaques are feeling drier and itchier, and I’m finding myself reaching for moisturiser much more often.

I know everyone’s psoriasis is different, so I wondered whether other people notice a seasonal pattern too. Does yours tend to get worse in…

Does anyone else have Myleodysplastic syndrome as well as PsA?

Does anyone else have Myleodysplastic syndrome as well as PSA [psoriatic arthritis]? I am severely neutropenic but starting sekunimab [secukinumab] Monday. Apparently the untreated PSA is helping drive the blood cancer.

Seasonal skin – does weather affect your psoriasis?

Many people say their psoriasis or psoriatic arthritis changes with the seasons, for example, drier and itchier in cold weather, or more irritated by heat, sweat or sun.

You might find yourself using thicker moisturisers in winter, being more careful with hot showers and indoor heating, or focusing more on sun protection and clothing in summer.

…
Show More