- PAPAA provides support to people with psoriasis and psoriatic arthritis, their families and carers. We also support healthcare professionals and assist the wider community to understand the needs of people affected by both conditions.
- PAPAA was formed because we felt there was a shortage of good information about psoriasis and psoriatic arthritis.
We know only too well the day-to-day struggles of living with a long-term medical condition and the problems that are faced by those with psoriasis and psoriatic arthritis.
We believe that by involving people who are actively affected by psoriasis and psoriatic arthritis, the charity will have the focus and insight needed to provide services that patients in the 21st century really want, whether it’s information, a listening ear or a disease management programme.
PAPAA aims to provide traditional patient support as well as new innovative approaches that a changing healthcare environment requires. As an organisation, we’re dedicated to keeping the patient-centred voice alive.
What do we offer?
As much or as little as you need, with no obligation. All of our support services are FREE and confidential.
PAPAA also spends a lot of time working on behalf of people with psoriasis and psoriatic arthritis, under the broad psoriatic disease banner.
- we support medical research via a small grant scheme
- we supply healthcare professionals with training programmes and information material for patients
- we represent and advocate on behalf of patients
- we raise awareness and respond to the media on relevant issues.
As a charity, PAPAA actively engages with suitable media and responds enthusiastically to requests and invitations to provide the perspective and views of people with psoriasis and psoriatic arthritis. The wide-ranging issues on which we are asked to comment include disease management, guidelines, access to care, drug and treatment evaluation, regulatory and safety concerns.
We also monitor and engage with government agencies such as the National Institute for Health and Care Excellence (NICE), the Scottish Medicine Consortium (SMC), the All Wales Medicines Strategy Group (AWMSG), The Department of Health, Social Services and Public Safety (HPSS) in Northern Ireland and the Medicines and Healthcare Products Regulatory Agency (MHRA). Many healthcare professional groups and medical charities also come to us for advice and input.