Sometimes seeing and hearing what others have to say can help to understand what it is like to live with psoriasis and psoriatic arthritis. PAPAA TV is our YouTube channel; there are seven short films to view.
You may also be interested our collection of bite size presentations of various aspects related to the work of PAPAA and psoriasis and psoriatic arthritis. To see our full collection, go to our YouTube channel by following the link at the bottom of this page.
This video is all about PAPAA and what we offer via our website. The website is independent and provides non-biased material and evidence-based self-help management tools and resources related to psoriasis and psoriatic arthritis. The main activities are to provide information, education and support to both patients and healthcare professionals. All activities are based on a patient-centred approach.
In this short video we are providing an introduction to virtual medical consultations, which are now being offered to many people instead of a face-to-face (F2F) appointment at a surgery or hospital. This is a simple guide just to give you an idea of what you may encounter or can expect will be involved in speaking to your healthcare provider over the telephone or via a secure video link.
To learn more about virtual consultations you can find a very useful page on our website about what to expect during a virtual consultation
If your child has psoriasis some of the questions you may ask are:
- Why does my child have psoriasis?
- Who should you see about your child’s psoriasis?
- How do I tell difference between psoriasis and eczema?
- What can I do to help?
Plus much more ...
Go to Psoriasis in children
Psoriasis in Practice is a patient-centred education programme, using patient interviews and case studies, clearly illustrating the everyday impact of psoriatic disease on the individual. The course can be accessed via any compatible device, computer, mobile and tablet. So you can start on one device and continue on another 24/7 at your own pace, in your own time. The programme helps nurses and healthcare professionals understand the individual needs of people with psoriasis, including how to assess and safely manage treatment for psoriasis patients.
Find out more by following this link
We've been connecting psoriasis and psoriatic arthritis since 1992, to keep up-to-date with what PAPAA does and news and latest information, why not sign-up to our free eNewsletter or just bookmark our headlines page.
If you have a news story, press/media release, or are looking to promote an event or activity or recruit into a research programme. You can send us your announcements and we will, if, it is appropriate, post in our news headlines section. We do not accept commercial advertising or allow product placement. This is a free service.
You can make a difference by telling people what is important about living with psoriasis and psoriatic arthritis. You can have your say by contributing to our blog, giving us your views, sending us your content and completing the PAPAA survey. You can also join the PAPAA Engagement Group. The role of this group is to provide PAPAA with front line views of what is appropriate and relevant to people with psoriatic disease. Follow the links to find out more: https://www.papaa.org/get-involved/
The more that you, as a patient, an individual, family member or friend, can know and educate yourself accurately about this condition the better you will be able to cope. Be an active participant, don’t just accept what you are being told, develop a partnership: Healthcare should be a two-way street, you should not just follow, but feel (and should be) part of the process. Remember it's your body, your life, you have control too. https://www.papaa.org/learn-about-pso...
Being diagnosed with psoriasis or psoriatic arthritis can be confusing. Learning how to understand the symptoms and getting to grips with the treatments will help you to cope and manage them successfully. The PAPAA website can provide support and information that will enable you to understand the treatments, how you can help yourself, how other people live with their condition and much more including practical tips of how to cope.
PAPAA supports well run medical research into psoriasis and psoriatic arthritis and does this by providing research grants, promoting research programmes, publicising results of research and by helping to recruit into research projects and trials. PAPAA is committed to supporting the dissemination of funded projects as wide and free to access as possible. This will be via our own publications both in-print and online. We will publish and encourage researchers to report results, regardless of whether they reach the initial expected outcomes, as we believe that any result from publicly funded research provides valuable additions to the furtherance of scientific knowledge and public benefit.
The Psoriasis and Psoriatic Arthritis Alliance (PAPAA) is an independent registered UK charity, which provides non-biased material and evidence-based self-help management tools and resources related to psoriasis and psoriatic arthritis. The main activities are to provide information, education and support to both patients and healthcare professionals. All activities are based on a patient-centred approach. The video describes our 'Statement of Intent'. This is the basis of what drives us and forms part of our philosophy and ethos. At all times and objectives are to be the best we can on behalf of those who we advocate and represent
PAPAA is an ethical charity and takes your privacy seriously. Any data you provide, such as your name, address and other personal information is kept only for record keeping, internal audit (6 years) and is stored securely. After that time records are deleted or destroyed securely. We do not share or transfer your data to any third party organisation, except where legally required to do so, such as if you have made a Gift Aid donation, we have to provide your name and postcode to Her Majesty's Revenue and Customs (HMRC), in order to provide proof that the donor is a UK tax payer.