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Engagement group

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Take an active part

Volunteer your time to help us
As a patient-centred charity PAPAA is committed to patient and public involvement (PPI) and consults with people affected by psoriasis and or psoriatic arthritis. As part of that process, we have developed an engagement group, which along with our medical advisory panel helps to provide positive advice, and supports our information delivery.

Role of the engagement group
The group consists of representative volunteers who have the condition or are directly affected by the condition; this may include partners, parents and children.

The role of the group is to provide PAPAA with front-line views of what is appropriate and relevant to patients, by identifying gaps and helping us to plug them. In most cases this will be to review output from the charity in the form of information, educational and awareness material, which will be available freely to those who are most in need.

Most typically request for input will be on an ad hoc basis and could include, but is not limited to:

  • Reviewing patient information leaflets
  • Take part opportunities – often external organisation requests
  • Media opportunities
  • Wider consultations/focus groups
  • Surveys
  • Expert patient input
  • Research opportunities

The role of engagement group members is not aimed at being too demanding and participants are under no obligation to do anything with which they feel uncomfortable. Any contribution however small, will be valued.

If you would like to be part of the engagement group, you will need to sign-in and then register your interest.

Join us