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The Psoriasis and Psoriatic Arthritis Alliance - a positive approach; effective management.
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Your rights to privacy and how others use and control your data is governed by law.
Below is our privacy statement and outlines our commitment to how we will treat any information (data) that you have willingly supplied, what it is, how we use it and our legal reason for retaining it.
The General Data Protection Regulation or GDPR, (Regulation (EU) 2016/679) is a regulation by which the European Parliament, the Council of the European Union and the European Commission intend to strengthen and unify data protection for all individuals within the European Union (EU). From 25 May 2018, this new data protection regime is in force.
Your individual rights
The GDPR includes the following rights for individuals:
How we manage your privacy
PAPAA is an ethical charity and takes your privacy seriously. Any data you provide, such as your name, address and other personal information is kept only for record keeping, internal audit (6 years) and is stored securely. After that time records are deleted or destroyed securely. We do not share or transfer your data to any third party organisation, except where legally required to do so, such as if you have made a Gift Aid donation, we have to provide your name and postcode to Her Majesty's Revenue and Customs (HMRC), in order to provide proof that the donor is a UK tax payer.
How we get data
All the data we process is derived following willing and direct contact to the organisation. This can be via:
What we hold - data you provide willingly
If you request any information from us such as leaflets, access to our training courses or you purchase a product, we will only use that data in accordance with the request you made. For example if you request a free information pack, we keep your details in a secure database as indicated above, and will not make any further contact with you, unless you have specifically opted in to receive further information. For example by joining the organisation's register, subscribing to the journal or electronic newsletter, information review group, take part register or specifically asking us to contact you. If we do contact you under any of those circumstance you have the right to see the data we hold, correct that data, or have that data removed permanently (right to be forgotten).
Automatic data gathering
When someone accesses this website, data is collected automatically about pages visited, time on those pages, geographic location, time and date when accessed and the devices used. This information is gathered from the Internet Protocol address (IP address). An IP address is a numerical label assigned to each device connected to a computer network that uses the internet protocol for communication. An IP address serves two principal functions: host or network interface identification and location addressing. No personal data can be accessed if someone knows your IP address. The data we gather therefore is anonymous, but helps us to understand how the site is being used. This in turn helps us in our work and contributes to the future work we may undertake to help provide support and help to people affected by psoriasis and psoriatic arthritis.
Transmission of information
Sending information over the internet is generally not completely secure, and we cannot guarantee the security of your data while it is in transit. This also applies to postal communications, unless sent by a secure 'signed for' option.
Following a link to another website
If you go to another website from this website, read the privacy policy on that website to find out what it does with your information. We can only securely control data we process.
Survey submissions
To help inform our work we gather data via surveys. In all cases you have the right to provide your views anonymously, if you do provide your details these will only be used based on the specific reason given on each survey, generally for follow-up purposes or to supply a copy of the survey results.
Feedback and comments
Feedback and comments can be provided to the organisation anonymously and any data gathered is used as stated above. If personal identifiers are provided that data is processed as stated above.
Subject access request
If you wish to know what data we hold on you, please contact us in writing, and we will provide you with a copy of data we hold. All reasonable requests will be supplied FREE of charge, and within a month of receipt of the request.
Transparency check list
Date of this statement:
March 2018
This policy will be reviewed periodically and is agreed by the board of trustees.