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Current opportunities

  • Psoriasis study in UK

    Organisation or institution: Global Patients

    Main study contact: Miryam

    Public contact details: miryam@globalpatients.com

    Description of activity: Task and interview

    "At Global Patients, an IQVIA business, we are looking for people with psoriasis from UK to participate in a 60-minute interview and to do a previous 60-minute task.

    We will compensate the participants with £120 as a token of appreciation for their time. There is no medical treatment being provided as part of this study. All data collected during this research will be treated anonymously, confidentially and analysed in aggregate form.

    If you are interested in participating or someone you know, please do not hesitate to contact miryam@global-patients.com"

    Recruit criteria: Psoriasis patients

    Where? In the UK

    Time commitment: 1-hour interview plus a 60 min pre-task

    Closing date: End of February 2023

    Funder/sponsor: Global Perspectives

    Please note:

    • This study is an external opportunity and not connected to PAPAA in any form.
    • PAPAA has not received any payment for placing this notice.
    • Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

     

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  • Channel 4 - The Dog house

    Organisation or institution: Channel 4

    Main study contact: Codie Lu Scott

    Public contact details: codieluscott@fivemilefilms.co.uk

    Description of activity: Could you provide a loving home for a rescue dog? The Channel 4 series, The Dog House is looking for couples, individuals, friends and families who are seriously considering bringing a rescue dog into their lives and are willing to share their reasons for doing so.

    Recruit criteria: People who would like to adopt a dog and are open to sharing their reason why. We are particularly looking to share how much a difference a dog can make to people’s mental health whilst living with a skin condition. We understand that with a skin condition come some serious anxieties. Studies have shown that even small interactions with dogs cause the human brain to produce oxytocin, a hormone often referred to as the “cuddle chemical.” Oxytocin increases feelings of relaxation, trust, and empathy while reducing stress and anxiety. Where?

    Location: Woodgreen Pets Charity

    Time commitment: 2 days approx.

    Closing date: 23/03/23

    Link to apply

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  • Psoriasis Research Study

    Are you or anyone you know living with moderate to severe plaque psoriasis?

    If so, consider participating in our psoriasis research study. You may be eligible for the study if you:

    • Are aged 18 to 74 years.
    • Have been diagnosed with psoriasis for at least 6 months.
    • Weigh 120kg or above.

    Organisation or institution: Accellacare Clinical Research

    Main study contact: Emilia Kudanowska

    Email: emilia.kudanowska@accellacare.com

    Public contact details: 0203 019 8766

    Website: www.improvingtreatments.co.uk

    About this study:

    • This study is evaluating the effectiveness of an adjustable brodalumab dosage regimen compared with standard brodalumab treatment in people with moderate-to-severe plaque psoriasis.
    • This study will last for approximately 64 weeks consisting of; a 4-week screening period, a 52-week treatment period (divided into a 16-week induction period and 36-week dose adjustment period), and an 8-week safety follow-up.
    • All eligible volunteers will receive study-related care and regular monitoring at study visits. Travel expenses will be reimbursed.

    Disclaimer: You may or may not benefit medically from taking part and there is absolutely no obligation to participate.

    If you are eligible and do decide to join the research study you are under no obligation to continue and may withdraw at any time and do not have to give us a reason for doing so.

    Recruit criteria: Patients diagnosed with moderate to severe psoriasis who are over 120kg.

    Where? Corby, Northamptonshire/ Shipley Yorkshire/ Coventry, Warwickshire/ Northwood, North London/ Orpington, South London

    Time commitment: 34 visits over 58 weeks

    Closing date: April 2025

    Funder/sponsor: Leo Pharma

    Please note:

    • This study is an external opportunity and not connected to PAPAA in any form.
    • PAPAA has not received any payment for placing this notice.
    • Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.
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  • Research on atopic dermatitis - external research organisation

    Activity title: Research on atopic dermatitis

    Organisation or institution: Exafield - market research

    Main study contact: Laurie Chardon

    Public contact details: chardon@exafield.com

    Description of activity:  We are currently conducting a market research study on atopic dermatitis (AD), and we would like to speak with you to explore some aspects of living with the disease.

    We are looking for patients. It will be an online research where we will ask the patient to download and test a new app on their smartphone.

    The patient will be reimbursed £10 to download the app, complete the little questionnaire and confirm us (10min maximum in total).

    ONE Inclusion criteria: - Been formally diagnosed with atopic dermatitis

    Recruit criteria: Atopic dermatitis

    Where?: Remote

    Time commitment: 10 min

    Funder/sponsor: We Fight

    This is an external to PAPAA opportunity. If you are interested, please contact the organisers direct.

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  • Understanding people’s experience of accessing biologic medicines for psoriatic arthritis

    Can you help a team of researchers?

    A group of rheumatologists, dermatologists and people with joint disease and other medical professionals are working together to improve care for people with psoriatic arthritis, through the British Psoriatic Arthritis Consortium (BritPACT).

    There are many highly effective medications (biologics) available in the UK to treat psoriatic arthritis but access to them can vary around the country.

    The team are seeking to understand people’s experience of accessing biologic medicines (good or bad) and how effective they have found them.

    Your input will help the development of future research projects and understand questions that are important from the perspective of people living with psoriatic arthritis.

    Your input and time taken to complete this survey is valued highly. Your responses will all be anonymous.

    Click here to go to the survey - thank you!

     

     

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  • Online survey of patients’ views on preventive therapy for psoriatic arthritis

    Organisation or institution

    Department of Rheumatology and Clinical Immunology at the Amsterdam UMC, location AMC

    Main study contact: Dr. Marleen van de Sande

    Public contact details: kir@amsterdamumc.nl

    Description of activity: Up to 1 in 3 people who have psoriasis can go on to develop a related arthritis causing joint pain and disability.

    Researchers are exploring whether it might be possible to treat people who have psoriasis to reduce their risk of developing psoriatic arthritis.

    This survey aims to understand what medications or lifestyle changes would be acceptable to people with psoriasis to reduce their chances of developing psoriatic arthritis in the future.

    Understanding patients’ preferences is important to ensure future treatments of this kind are efficient and acceptable to patients. This survey is a one-time questionnaire that should not take longer than 20 minutes to complete. Participation is voluntary, and all responses to the survey will remain confidential and anonymous.

    This study is in collaboration with Dr. Laura Coates (Principal investigator, Associate Professor, rheumatologist Oxford), Dr. Marie Falahee (Lecturer in Behavioral Rheumatology, University of Birmingham), Dr. Jorien Veldwijk (Assistant-professor, Erasmus School of Health Policy & Management), Prof. Stephen Pennington (Professor Of Proteomics, University College Dublin) and Prof. Oliver FitzGerald (Newman Clinical Research Professor, University College Dublin).

    Recruit criteria: You can take part in this survey if you:

    • Are aged 18 years or older
    • Have been diagnosed by a doctor as having psoriasis
    • Currently living in the United Kingdom
    • Are able to read and complete a survey that is in English
    • Have not been diagnosed by a doctor as having psoriatic arthritis

    Where? Remote, it's an online survey

    Time commitment: 20 minutes

    To take part follow this link

    Closing date: 1 March 2023

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  • Understanding and supporting adherence to topical therapies in people living with psoriasis

    Organisation or institution

    Sheffield Hallam University

    Main study contact 

    Dr Elaine Clarke

    Public contact details

    elaine.clarke@shu.ac.uk

    Description of activity

    We would like people to take part in a one-off online survey at a time that is convenient to them. The survey questions will ask for some demographic information, information about the person's psoriasis and its treatment(s), and about how they normally respond to difficult situations. We expect taking part in the survey to take around 15 minutes.

    Recruit criteria

    People who have been prescribed topical treatments for psoriasis that have an active ingredient (i.e., not just moisturisers/emollients)

    Where?

    Remote

    Time commitment

    Approx 15 minutes

    Link to survey

    To find out more and begin the survey, go to: Survey page

    Other information

    Sheffield Hallam University's Reseach Ethics Committee has approved this study.

     

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  • The APPLE Study: Asking People with Psoriasis about Lifestyle and Eating

    Have you ever wondered whether what you eat affects your psoriasis? This is one of the commonest questions that people with psoriasis have. At present, there is not enough high-quality research to be able to be able to make specific recommendations. To help answer this question, we have launched The APPLE Study!

    This is the first study of its kind in the UK. We aim to find out if there are certain diet and lifestyle patterns that are more commonly found in people with more severe psoriasis compared with those with milder forms. This research will help us understand if dietary changes could be helpful for psoriasis management in the longer term.

    Participation in The APPLE Study will involve the completion of:

    • a multiple-choice survey on life-style patterns, psoriasis, and diet
    • a diet diary

    The APPLE Study will take place online. You will need internet connection to access the online survey and diet diary.

    We strongly encourage you to complete The APPLE Study on a laptop, or desktop computer as some of the questions will not display properly on a smartphone. 

    On completion of The APPLE Study you will receive: 

    • a nutrition report
    • an invitation to attend a Webinar on “A Guide to Nutrition & Psoriasis” by Consultant Dermatologist, Dr Thivi Maruthappu

    Eligibility requirements

    • Adult (18 years of age or older)
    • A diagnosis of psoriasis by a healthcare professional
    • UK resident
    • Fluent in English

    Enrolling in The APPLE Study:

    To participate 

    For more information

    Contact Information

    Email: dietandpsoriasisproject@kcl.ac.uk.

    Instagram: the_apple_study

     

     

     

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  • Exploring the role of diet in the management of psoriasis: Dietary behaviours, perceptions and self-reported skin outcomes of people with psoriasis

    Activity title

    Exploring the role of diet in the management of psoriasis: Dietary behaviours, perceptions and self-reported skin outcomes of people with psoriasis

    Organisation or institution

    The University of Hertfordshire, Nutrition and Dietetics Department

    Main study contact

    Poppy Hawkins: p.hawkins@herts.ac.uk

    Public contact details

    Email - Poppy Hawkins: p.hawkins@herts.ac.uk

    Description of activity

    We are investigating dietary habits in people with psoriasis and how this impacts their symptoms and long-term management of their condition. We also want to understand more about which diets people with psoriasis are trying, and where they go for information, and experiences. Little research has been done in this area. By taking part in this study, you will be helping us to understand how best to support people with psoriasis, in the absence of clear dietary guidance. This is an anonymous online questionnaire which will take about 25 minutes to complete. This study has been approved by The University of Hertfordshire Health, Science, Engineering and Technology Ethics Committee with Delegated Authority, reference: aLMS/PGR/UH/05068(1).

    Recruit criteria

    People who have been diagnosed with psoriasis, over the age of 18 years old, can read, write and speak English fluently and live at a UK address (but not in an institution)

    Where?

    Remote - Online questionnaire. There is an option to do it over the phone if someone is unable to do it online. Just contact Poppy Hawkins (p.hawkins@herts.ac.uk).

    Link to questionnaire

    Time commitment

    An estimated 25 mins

    Other information

    Other researchers involved. Supervisor, Dr Rosalind Fallaize (r.fallaize@herts.ac.uk), Dr Kate Earl (k.earl@herts.ac.uk) and Dr Athanasios Tektonidis (a.tektonidis@herts.ac.uk); each of which have extensive experience in large nutritional studies, epidemiology, and clinical nutrition. Those who complete the questionnaire will be given the option to participate in a further diet and psoriasis study, if they wish to.

    Funder/sponsor

    This is being done as part of a QR-funded PhD Studentship, titled ‘The role of diet in the management of psoriasis’ 2021-2024. At the University of Hertfordshire.

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  • Treatment of Psoriasis: A Study on Patient Preference

    Activity title: Comparison of Wynzora Cream and Enstilar Foam in the Treatment of Psoriasis - a Study on Patient Preference.

    Organisation or institution: The Center for Dermatology and Dermatologic Surgery.

    Main study contact: Dr. Bev Fontaine

    Public contact details: text 202-695-0409 or Call 202-955-5757

    Description of activity: The purpose of this study is to investigate whether people with psoriasis prefer applying a cream formulation or a foam formulation of study medication to their skin. we are comparing two medications used for the treatment of psoriasis. Their only difference is that one is foam and the other is a cream. Participants in this study will have both products applied to their skin. They will then complete a series of questionnaires to determine which product they prefer.

    Recruit criteria: 18 years of age or older; No history of hypercalcemia; high vitamin D; or significant renal or liver disease.

    Where?: The study visit will take place at The Center for Dermatology at 2311 M street, Washington DC 20037.

    Time commitment: There is only one visit needed. The visit will last approximately 2 hours.

    Other information: Qualified participants who complete the study will receive a stipend payment for their time. Participants may also receive study-related medication and care for the duration of the study.

    Funder/sponsor: Research is carried out at the Center for Dermatology and is sponsored and financed by Almirall. It has reviewed by an IRB.

    Please note: PAPAA has no connection with this study or the sponsors and has not received any funds or payment of any kind, for highlighting this opportunity.

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  • Recruits needed for psoriasis research

    People with mild to moderate plaque-type psoriasis are needed for a research study.

    You must be aged 18 to 65 years old and have a confirmed diagnosis for at least 6 months.

    Smokers of up to 20 cigarettes, or equivalent per day allowed. It involves 1 session of 4 nights’ residence and 9 outpatient visits, over 3 months.

    Study fee: £2,950 plus reasonable travel expenses.

    You might not be suitable, if you’re taking certain medications

    If interested, you will need to contact HMR directly

    Email: recruit@hmrlondon.com 
    Telephone: 0800 783 8792

    Please note: This activity is independent of PAPAA.

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  • Psoriasis and psoriatic arthritis continuing data collection survey

    We have a continual process of data gathering, which we do via all the processes of joining PAPAA. This  largely unpublished data gives us a view of our demographic group, therefore allowing us to tailor our material to suit.

    We also have been surveying people with psoriasis and psoriatic arthritis since our early origins for more than 20 years. Those rich qualitative data provides us with a real life view and also helps us to put forward a collective consensus of what it is really like to live with both psoriasis and psoriatic arthritis.

    You can be part of that process and also know that whatever you say will be confidential and anonymous, it’s up to you.

    We have now developed the PAPAA survey, which aims to build and add to those previous data results.

    The sections: 

    We will not ask for your name or contact details, all submission will therefore be anonymous. There are a few compulsory sections, to help us understand who we represent.  

    About you: The answers you give will help us to raise the true impact and how it affects real people, by providing a UK wide picture. 

    Quality of life: In order to give the true effect of psoriasis and or psoriatic arthritis, we would like to know how it affects your day-to-day life.

    Research priorities: As someone who lives with a chronic disease, you have a unique insight into the issues that are important to you. We would like to gather these issues together and create a list of priorities that are important to people with psoriasis and psoriatic arthritis.

    Final comments: Your chance to say anything else not covered in the other sections, these comments will help us to provide rich information that has context and is meaningful.

    Be part of the bigger picture and get your opinions and views logged, so we can tell those who need to know exactly what you and others with these conditions actually feel, think and want to be said.

    Data from the PAPAA survey has been used in submissions to support the patient perspective in health technology assessments, with the National Institute for Health and Care Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG).

    Complete the survey

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  • Real world evidence - meeting your needs

    Help us, to help you, by answering a quick survey.

    We would like to understand what is important to people with psoriasis and or psoriatic arthritis, when using internet search engines for answers to questions.

    By completing the survey you will be helping us to endeavour to meet your needs.

    Complete the survey

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  • Personal stories project: Describe your journey.

    • Do you have a personal journey to share about your psoriasis or psoriatic arthritis?
    • Would you like others to know how your life has been affected?
    • Would you like to tell us about the care and treatments you have received?

    This is your opportunity to let others know what it is like to live with these conditions.

    How you were diagnosed, the treatments you received, how the appointment was delivered, or anything else that you want to share that you feel would help others in their journey living with psoriasis or psoriatic arthritis. 

    • The negative and the positive effects.
    • Share your thoughts and let others see the impact.

    It's up to you, if you just want to get something off your chest, here is your chance.

    You can submit anonymously or share your name.

    We will add your personal journey to this website and with your help build a picture of the extent these conditions have on real people and their lives.

    Please note: We will not publish your name and may edit your submission to protect your privacy and that of others mentioned.

    Share your story

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