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Current opportunities

  • Exploring the role of diet in the management of psoriasis: Dietary behaviours, perceptions and self-reported skin outcomes of people with psoriasis

    Activity title

    Exploring the role of diet in the management of psoriasis: Dietary behaviours, perceptions and self-reported skin outcomes of people with psoriasis

    Organisation or institution

    The University of Hertfordshire, Nutrition and Dietetics Department

    Main study contact

    Poppy Hawkins: p.hawkins@herts.ac.uk

    Public contact details

    Email - Poppy Hawkins: p.hawkins@herts.ac.uk

    Description of activity

    We are investigating dietary habits in people with psoriasis and how this impacts their symptoms and long-term management of their condition. We also want to understand more about which diets people with psoriasis are trying, and where they go for information, and experiences. Little research has been done in this area. By taking part in this study, you will be helping us to understand how best to support people with psoriasis, in the absence of clear dietary guidance. This is an anonymous online questionnaire which will take about 25 minutes to complete. This study has been approved by The University of Hertfordshire Health, Science, Engineering and Technology Ethics Committee with Delegated Authority, reference: aLMS/PGR/UH/05068(1).

    Recruit criteria

    People who have been diagnosed with psoriasis, over the age of 18 years old, can read, write and speak English fluently and live at a UK address (but not in an institution)

    Where?

    Remote - Online questionnaire. There is an option to do it over the phone if someone is unable to do it online. Just contact Poppy Hawkins (p.hawkins@herts.ac.uk).

    Link to questionnaire

    Time commitment

    An estimated 25 mins

    Other information

    Other researchers involved. Supervisor, Dr Rosalind Fallaize (r.fallaize@herts.ac.uk), Dr Kate Earl (k.earl@herts.ac.uk) and Dr Athanasios Tektonidis (a.tektonidis@herts.ac.uk); each of which have extensive experience in large nutritional studies, epidemiology, and clinical nutrition. Those who complete the questionnaire will be given the option to participate in a further diet and psoriasis study, if they wish to.

    Funder/sponsor

    This is being done as part of a QR-funded PhD Studentship, titled ‘The role of diet in the management of psoriasis’ 2021-2024. At the University of Hertfordshire.

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  • The APPLE Study: Asking People with Psoriasis about Lifestyle and Eating

    Have you ever wondered whether what you eat affects your psoriasis? This is one of the commonest questions that people with psoriasis have. At present, there is not enough high-quality research to be able to be able to make specific recommendations. To help answer this question, we have launched The APPLE Study!

    This is the first study of its kind in the UK. We aim to find out if there are certain diet and lifestyle patterns that are more commonly found in people with more severe psoriasis compared with those with milder forms. This research will help us understand if dietary changes could be helpful for psoriasis management in the longer term.

    Participation in The APPLE Study will involve the completion of:

    • a multiple-choice survey on life-style patterns, psoriasis, and diet
    • a diet diary

    The APPLE Study will take place online. You will need internet connection to access the online survey and diet diary.

    We strongly encourage you to complete The APPLE Study on a laptop, or desktop computer as some of the questions will not display properly on a smartphone. 

    On completion of The APPLE Study you will receive: 

    • a nutrition report
    • an invitation to attend a Webinar on “A Guide to Nutrition & Psoriasis” by Consultant Dermatologist, Dr Thivi Maruthappu

    Eligibility requirements

    • Adult (18 years of age or older)
    • A diagnosis of psoriasis by a healthcare professional
    • UK resident
    • Fluent in English

    Enrolling in The APPLE Study:

    To participate 

    For more information

    Contact Information

    Email: dietandpsoriasisproject@kcl.ac.uk.

    Instagram: the_apple_study

     

     

     

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  • Treatment of Psoriasis: A Study on Patient Preference

    Activity title: Comparison of Wynzora Cream and Enstilar Foam in the Treatment of Psoriasis - a Study on Patient Preference.

    Organisation or institution: The Center for Dermatology and Dermatologic Surgery.

    Main study contact: Dr. Bev Fontaine

    Public contact details: text 202-695-0409 or Call 202-955-5757

    Description of activity: The purpose of this study is to investigate whether people with psoriasis prefer applying a cream formulation or a foam formulation of study medication to their skin. we are comparing two medications used for the treatment of psoriasis. Their only difference is that one is foam and the other is a cream. Participants in this study will have both products applied to their skin. They will then complete a series of questionnaires to determine which product they prefer.

    Recruit criteria: 18 years of age or older; No history of hypercalcemia; high vitamin D; or significant renal or liver disease.

    Where?: The study visit will take place at The Center for Dermatology at 2311 M street, Washington DC 20037.

    Time commitment: There is only one visit needed. The visit will last approximately 2 hours.

    Other information: Qualified participants who complete the study will receive a stipend payment for their time. Participants may also receive study-related medication and care for the duration of the study.

    Funder/sponsor: Research is carried out at the Center for Dermatology and is sponsored and financed by Almirall. It has reviewed by an IRB.

    Please note: PAPAA has no connection with this study or the sponsors and has not received any funds or payment of any kind, for highlighting this opportunity.

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  • Recruits needed for psoriasis research

    People with mild to moderate plaque-type psoriasis are needed for a research study.

    You must be aged 18 to 65 years old and have a confirmed diagnosis for at least 6 months.

    Smokers of up to 20 cigarettes, or equivalent per day allowed. It involves 1 session of 4 nights’ residence and 9 outpatient visits, over 3 months.

    Study fee: £2,950 plus reasonable travel expenses.

    You might not be suitable, if you’re taking certain medications

    If interested, you will need to contact HMR directly

    Email: recruit@hmrlondon.com 
    Telephone: 0800 783 8792

    Please note: This activity is independent of PAPAA.

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  • Psoriasis and psoriatic arthritis continuing data collection survey

    We have a continual process of data gathering, which we do via all the processes of joining PAPAA. This  largely unpublished data gives us a view of our demographic group, therefore allowing us to tailor our material to suit.

    We also have been surveying people with psoriasis and psoriatic arthritis since our early origins for more than 20 years. Those rich qualitative data provides us with a real life view and also helps us to put forward a collective consensus of what it is really like to live with both psoriasis and psoriatic arthritis.

    You can be part of that process and also know that whatever you say will be confidential and anonymous, it’s up to you.

    We have now developed the PAPAA survey, which aims to build and add to those previous data results.

    The sections: 

    We will not ask for your name or contact details, all submission will therefore be anonymous. There are a few compulsory sections, to help us understand who we represent.  

    About you: The answers you give will help us to raise the true impact and how it affects real people, by providing a UK wide picture. 

    Quality of life: In order to give the true effect of psoriasis and or psoriatic arthritis, we would like to know how it affects your day-to-day life.

    Research priorities: As someone who lives with a chronic disease, you have a unique insight into the issues that are important to you. We would like to gather these issues together and create a list of priorities that are important to people with psoriasis and psoriatic arthritis.

    Final comments: Your chance to say anything else not covered in the other sections, these comments will help us to provide rich information that has context and is meaningful.

    Be part of the bigger picture and get your opinions and views logged, so we can tell those who need to know exactly what you and others with these conditions actually feel, think and want to be said.

    Data from the PAPAA survey has been used in submissions to support the patient perspective in health technology assessments, with the National Institute for Health and Care Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG).

    Complete the survey

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  • Real world evidence - meeting your needs

    Help us, to help you, by answering a quick survey.

    We would like to understand what is important to people with psoriasis and or psoriatic arthritis, when using internet search engines for answers to questions.

    By completing the survey you will be helping us to endeavour to meet your needs.

    Complete the survey

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  • Personal stories project: Describe your journey.

    • Do you have a personal journey to share about your psoriasis or psoriatic arthritis?
    • Would you like others to know how your life has been affected?
    • Would you like to tell us about the care and treatments you have received?

    This is your opportunity to let others know what it is like to live with these conditions.

    How you were diagnosed, the treatments you received, how the appointment was delivered, or anything else that you want to share that you feel would help others in their journey living with psoriasis or psoriatic arthritis. 

    • The negative and the positive effects.
    • Share your thoughts and let others see the impact.

    It's up to you, if you just want to get something off your chest, here is your chance.

    You can submit anonymously or share your name.

    We will add your personal journey to this website and with your help build a picture of the extent these conditions have on real people and their lives.

    Please note: We will not publish your name and may edit your submission to protect your privacy and that of others mentioned.

    Share your story

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