Current opportunities: Clinical trial

Activity title

PREDICT - Psoriatic Arthritis Recognising Early Disease Indicators Conferring Treatment response

Organisation or institution

University of Oxford

Main study contact

Dylan McGagh

Public contact details

Email: dylan.mcgagh@ndorms.ox.ac.uk or through QR code registration

Description of activity

We are looking for people to join our patient partner group for the PREDICT study. This study will investigate whether blood tests can predict which patients will respond to different treatments. This study will also test the use of digital tools such as smartwatches and apps to capture more about how patients with psoriatic arthritis feel and function in response to different treatments. We want to gather the perspectives of individuals with psoriatic arthritis on our overall study aims, gain some feedback on our study specific app and more broadly ask on perspectives of using digital measures to capture information on symptoms and mobility.

Recruit criteria

Individuals with a diagnosis of psoriatic arthritis

Where?

Remote session on Teams / Zoom

Time commitment

1.5 hour online session

Closing date

10/12/2023

Funder/sponsor

British Psoriatic Arthritis Consortium (Brit-PACT)

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

Institution: University of Oxford

Main study contact: Professor Laura Coates

Public contact details: hpos@ndorms.ox.ac.uk

Description of activity: We are planning to launch a European online study in June of this year to monitor people with psoriasis to see who develops PsA. The study will be completely remote with participants filling in questionnaires online and sending small fingerprick blood samples by post.

We are aiming to recruit 25,000 people with psoriasis across 10 countries. We think this cohort of patients will help us to completely change how we think about the development of PsA and how to predict this.

It will help us to design prevention studies, where we would offer potential drug treatments or lifestyle interventions (like exercise, stress management etc) to see if we can prevent PsA. We have really carefully designed the study with a number of patient partners across Europe.

Recruit criteria: People with psoriasis but not (yet) PsA

Where? All remote

Time commitment: Approx 20 mins every 6 months

Closing date: June 2024

Funder/sponsor: IMI funded consortium

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

This opportunity is now closed

Organisation or institution: iPROLEPSIS https://www.iprolepsis.eu

Main study contact: Laura Coates

Public contact details: https://www.iprolepsis.eu/contacts

Description of activity: We are looking for people with psoriatic arthritis to help with a survey. This survey is part of the iPROLEPSIS project, funded by the European Union. With a duration of 4 years this project aims to develop a digital health system for the care of psoriatic arthritis patients.

Within iPROLEPSIS we want to apply technology, such as smartphones and smartwatches to help you monitor your disease and help you find the coping mechanisms that suit you.

We are at the beginning of the development process and would love your input on various ideas. Your input will be used to create user requirements for the developed services. So your opinion counts!

All data is confidential and completely anonymous. It will take about 20-30 minutes to fill out this questionnaire. Your efforts will be well appreciated.

Here is the link to the iPROLEPSIS survey 

Recruit criteria: People diagnosed with psoriatic arthritis

Where? Online survey

Time commitment: 20 - 30 minutes

Closing date: 31 July 2023

Funder: European Union

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

This opportunity is now closed

Activity title

Exploring the role of diet in the management of psoriasis: Dietary behaviours, perceptions and self-reported skin outcomes of people with psoriasis

Organisation or institution

The University of Hertfordshire, Nutrition and Dietetics Department

Main study contact

Poppy Hawkins: p.hawkins@herts.ac.uk

Public contact details

Email - Poppy Hawkins: p.hawkins@herts.ac.uk

Description of activity

We are investigating dietary habits in people with psoriasis and how this impacts their symptoms and long-term management of their condition. We also want to understand more about which diets people with psoriasis are trying, and where they go for information, and experiences. Little research has been done in this area. By taking part in this study, you will be helping us to understand how best to support people with psoriasis, in the absence of clear dietary guidance. This is an anonymous online questionnaire which will take about 25 minutes to complete. This study has been approved by The University of Hertfordshire Health, Science, Engineering and Technology Ethics Committee with Delegated Authority, reference: aLMS/PGR/UH/05068(1).

Recruit criteria

People who have been diagnosed with psoriasis, over the age of 18 years old, can read, write and speak English fluently and live at a UK address (but not in an institution)

Where?

Remote - Online questionnaire. There is an option to do it over the phone if someone is unable to do it online. Just contact Poppy Hawkins (p.hawkins@herts.ac.uk).

Link to questionnaire

Time commitment

An estimated 25 mins

Other information

Other researchers involved. Supervisor, Dr Rosalind Fallaize (r.fallaize@herts.ac.uk), Dr Kate Earl (k.earl@herts.ac.uk) and Dr Athanasios Tektonidis (a.tektonidis@herts.ac.uk); each of which have extensive experience in large nutritional studies, epidemiology, and clinical nutrition. Those who complete the questionnaire will be given the option to participate in a further diet and psoriasis study, if they wish to.

Funder/sponsor

This is being done as part of a QR-funded PhD Studentship, titled ‘The role of diet in the management of psoriasis’ 2021-2024. At the University of Hertfordshire.

Activity title: Comparison of Wynzora Cream and Enstilar Foam in the Treatment of Psoriasis - a Study on Patient Preference.

Organisation or institution: The Center for Dermatology and Dermatologic Surgery.

Main study contact: Dr. Bev Fontaine

Public contact details: text 202-695-0409 or Call 202-955-5757

Description of activity: The purpose of this study is to investigate whether people with psoriasis prefer applying a cream formulation or a foam formulation of study medication to their skin. we are comparing two medications used for the treatment of psoriasis. Their only difference is that one is foam and the other is a cream. Participants in this study will have both products applied to their skin. They will then complete a series of questionnaires to determine which product they prefer.

Recruit criteria: 18 years of age or older; No history of hypercalcemia; high vitamin D; or significant renal or liver disease.

Where?: The study visit will take place at The Center for Dermatology at 2311 M street, Washington DC 20037.

Time commitment: There is only one visit needed. The visit will last approximately 2 hours.

Other information: Qualified participants who complete the study will receive a stipend payment for their time. Participants may also receive study-related medication and care for the duration of the study.

Funder/sponsor: Research is carried out at the Center for Dermatology and is sponsored and financed by Almirall. It has reviewed by an IRB.

Please note: PAPAA has no connection with this study or the sponsors and has not received any funds or payment of any kind, for highlighting this opportunity.

People with mild to moderate plaque-type psoriasis are needed for a research study.

You must be aged 18 to 65 years old and have a confirmed diagnosis for at least 6 months.

Smokers of up to 20 cigarettes, or equivalent per day allowed. It involves 1 session of 4 nights’ residence and 9 outpatient visits, over 3 months.

Study fee: £2,950 plus reasonable travel expenses.

You might not be suitable, if you’re taking certain medications

If interested, you will need to contact HMR directly

Email: recruit@hmrlondon.com 
Telephone: 0800 783 8792

Please note: This activity is independent of PAPAA.