A principal source of advice, support and information on psoriasis and psoriatic arthritis
A registered charity no: 1118192
A registered charity no: 1118192
People experiencing psoriasis may get relief from their symptoms and the psychological distress they can cause through a new web-based therapy programme.
Skin experts and psychologists at The University of Manchester have teamed up to design a computer program known as `electronic Targeted Intervention for Psoriasis' or eTIPS to help sufferers cope with and manage their condition better.
“Psoriasis is a chronic skin disease that usually appears as patches of raised, red scaly plaques anywhere on the surface of the skin. It is an inflammatory disease believed to be related to faulty signals sent to skin cells by the body's immune system,” said Dr Christine Bundy, senior lecturer in psychological medicine and a member of the research team.
“The condition affects between two and three per cent of the UK population and can have an effect on the way people think and feel about themselves, as well as how to cope with day to day life”.
“Psychological discomfort is made worse by the visible nature of the condition and people may feel reluctant to expose parts of their body affected with psoriasis, often covering up with long sleeves, trousers and polo necks”.
“Psoriasis has been known to affect people's work, relationships and the activities they do, leading to anxiety, stress, worry, and difficulties with coping.”
The eTIPS study, funded and supported by the Psoriasis and Psoriatic Arthritis Alliance (PAPAA), is based on cognitive behaviour therapy - a successful psychological treatment that helps individuals understand that the way they think about a situation can affect the way they feel and behave. It is a web-based stress management programme and target areas found to be of relevance to many psoriasis patients, eg, depression, anxiety, stress, tension, low self-esteem, poor quality of life, and difficulties with coping (sleep problems, alcohol use).
The programme is interactive and consists of useful information which can be put in to practise, videos and audio clips of psoriasis patients dealing with their skin condition, relaxation videos, certain activities/exercises to complete, and various information sheets which can be printed for future use.
Participants will be asked to complete up to three web-based questionnaires over a six week period with a further follow-up questionnaire at six months.
“The programme will be delivered online so that it is widely available and can reach out to individuals who may not wish to discuss psychological complaints face-to-face,” said Dr Bundy.
“Another benefit of using the internet is that participants can take part at their own convenience and in the privacy of their own home, working at their own pace.”
The trial is open to individuals aged 16 and over who have been diagnosed with plaque psoriasis and have internet access.
The study will run until December 2009.
For further information please contact:
Miss Binder Kaur
(eTIPs research fellow at the University of Manchester)
Email: firstname.lastname@example.org or
Telephone: 0161 306 0422
Ammended 22 April 2009
Please note: The trial has completed recruiting participants. The data is currently being analysed. Once this has been completed the programme will be available to access. If you wish to register an interest please email: email@example.com with eTIPs programme in the subject line.
Note added: 8 June 2010